Showing posts with label cervical cancer. Show all posts
Showing posts with label cervical cancer. Show all posts

Wednesday, December 12, 2012

Seasonal Attitude Disorder


I am really trying to be enthusiastic about the holidays this year. On November 30, 2011 Eddie and I signed our final divorce papers and I was just emerging from a bout with cervical cancer. The complicated and conflicting emotions involved included being grateful for my life while wondering what on earth I was going to do with the rest of it. I was at a loss and that pretty much sapped my close-of-2011 energy. I was lonely, depressed, afraid and reclusive. I sat out December altogether and spent a low-key New Year's Eve with close friends.

2012 has had its ups and downs but by and large, I am healthier and more whole than I can ever remember. The cancer is in remission, memories of an unhappy marriage began to recede and occupy their rightful, proportionate place. I grew professionally as I settled into a day job as the head writer for a housewares company, formulated new and interesting friendships, even took a couple shots at romance again. As the record currently stands, these forays into attachment did not end happily, but there was a time I believed I could never risk my heart. So there's a simple pride in having put myself out there.

More than five weeks ago, as regular readers of this blog are aware, L'il Red (my beloved bike) and I were involved in a somewhat hellacious accident involving an unwise yellow-light decision and a moving SUV. I was thrown from the bicycle, landing squarely on my tailbone and sacrum (the base of the spine) in the process. Both of these bones are fractured but despite the weeks of discomfort behind me as well as the months of recovery ahead, I know it could have been much worse.

And dammit, I like to think of myself as a tough gal but continuous pain, drug side effects and the limiting of my range of motion are conspiring to upend this self-image. I hurt without medication. I struggle to eat and sleep when taking it. And no matter the state of physical discomfort, the holiday season is here to make me feel more pathetic and alone than I might otherwise. It's frustrating because I was bloody determined not to be a humbug this year.

I have a pre-lit Christmas tree in my living room, a gift from the most recent boyfriend. When I find myself in the throes of pain, or sleepless from its relief, I turn on the four foot tall symbol of holiday cheer. Admittedly is is tougher to scowl when surrounded by glittering lights, but this kind of reminds me of those lamps doctors recommend to patients with Seasonal Affective Disorder. The light takes the edge off but it's no real substitute for the sun you know? Likewise the flickering tannenbaum brings a fleeting comfort but it doesn't replace the real sense of belonging, togetherness and celebration that the holiday season portends, and for which I yearn.

I'm writing about these feelings because I wish to master them. Know thine enemy and all that. I feel myself slipping into the usual Christmas despondency and the hope is that by recognizing it, I can hold it at bay. Growing up the eldest child of abusive and neglectful parents, the 12 Days of Christmas usually involved a rundown of why I didn't deserve the blessings bestowed and what I had done to disappoint my progenitors throughout the calendar year. I am 34 years-old now. I don't need or deserve to hear these voices this year - from my lips or anyone else's.

Tuesday, June 12, 2012

An Ode to Cancer: One Year Later

You came to my door
When I was getting divorced.
You couldn't have picked a messier time.

I walked around in a daze
Feeling crazed,
Because even after she said the words I felt fine.

Surgery was scheduled,
Estranged spouses bedeviled,
Unable to work together.

Recovery alone
In my studio home.
Thought I'd be "that poor woman" forever.

After a week and a day,
Back on my way,
Like it never happened at all.

Until the divorce was done
And the new underwriter won,
A "pre-existing condition" free fall.

You went in remission
And I accepted the condition
That I had been wasting my hours.

With putting those first
Who were often worst
Letting mind and body go sour.

So I focused on work,
Learned to admire my quirks
Fell in love again with my friends.

And I learned to say "yes"
To almost any quest,
And with past wrongs make amends.

So maybe I should thank you,
You created a milieu,
To foment a real rebellion.

You couldn't hold me down,
And now that I'm found,
I see a lovable hellion.

Tuesday, April 24, 2012

America's Health Care System is Still Broken Part II


I will keep writing about this because I am one of the lucky ones. I will keep screaming about the system's inherent abusiveness because I can and I must - for all those who are sicker, less financially solvent and don't have a forum in which their voices may be heard.

Nearly a year ago, I wrote this post, recounting the stress of divorce compounded by unexpected health news of the unfavorable kind. After being diagnosed with Stage 2A cervical cancer, I learned that I was considered persona non grata by prospective health insurance providers until I was in remission. At the time, I received the core-rattling news that none of my women's health needs would be covered for 3-5 years, or until the part of Obamacare that forbids insurance companies from playing pre-existing condition roulette with people's lives takes over in January 2013.

Since I wrote the first post in this series last year, a few important events have occurred:
  1. I underwent a successful procedure in June, 2011 that completely removed all cancerous cells from my body - no chemo or radiation required. A six-month checkup in December found no evidence of irregular growth.
  2. I have since gotten into the healthiest shape of my life. I was already no slouch in the exercise department, but have taken the upkeep of my temple in whole new directions. I have learned, through therapy and hard work, to better manage stress. I am invested in a romantic partnership that brings untold levels of peace and satisfaction. I am more careful about what I put into my body and my approach to preventive medicine has changed completely.
  3. I am officially divorced, no longer on my ex's insurance plan and employed full-time at a housewares manufacturer with great benefits.

As I have already indicated, I was fully prepared for my women's health coverage to be excluded for 2012. Whether I think the situation is fair or not (not) is irrelevant. You know the saying, "it is what it is." I was planning to bide my time, and though I am not religious, ask Mother Earth to keep the cancer at bay. My single-adult premiums on the new policy amount to $6,000 annually and while I felt forced into a "cross your fingers" strategy as pertained to the cancer, at least I would be covered under all other circumstances right? Wrong.

The new Big Brother in my healthcare decision-making world, a company that will remain nameless but rhymes with Dew Toss, Dew Field of Iroquois, has declared a blanket "pre-existing condition clause" that covers EVERYTHING for which I have ever been treated. Surprise! This clause runs the full calendar year, so I have the honor of forking over $6,000 in the event I am shot or hit by a bus (neither of which has ever happened), but if I need therapy (you know because I was depressed about having cancer), antibiotics, birth control or my first annual cancer screening - all of that must come out of my pocket. My doctor and I jumped through numerous hoops and made many arguments, to no avail. A girl who rides her bike 68 miles to work and back, under the age 35 with the bad luck to get a little spot of cancer last year, is reduced to nothingness until 2013.

And as we all know today, the conclusion above represents the best-cased scenario. Subsequent to the decision by a bunch of corporate bureaucrats that I am too risky for any sort of benefits, though my money is still welcome, a bunch of mostly old ,white men on the Supreme Court will sit in judgment of my fate beyond this calendar year. By June we are told, the ladies and gentlemen of the jury will decide whether to throw the baby out with the bathwater on health care reform, because a few hundred lobbyists and Tea Party crackpots chafe against the individual mandate portion.

So we can make car insurance as a condition of vehicle ownership law, but this is somehow different? Can they really declare that no part of the reform benefits the American people? What about the part where, I don't know, insurance companies can't refuse you access to ALL TYPES OF HEALTHCARE because you had a treatable cancer that was cured in one shot?

If the Supreme Court overturns Obamacare, I am out in the cold for 5 years, perhaps longer if an emboldened insurance syndicate decides so. I can't believe this is America.

About the Supreme Court's deliberations, the Daily Beast remarked in November of last year, "By agreeing to rule on the issue of national health care, the Supreme Court foolishly politicizes its deliberation process and needlessly damages its own reputation."

But this is about more than a simple PR misstep, the negation of jurisprudence. This is about American rights and lives. I think I have a patriotic duty to protest my provider's current right to kill or bankrupt me in the unfortunate event that my cancer recurs, or that I come down with the flu and need antibiotics and a short hospital stay. I want the Supreme Court to consider that with the same fervor with which they seem to regard a libertarian's right to refuse health coverage when that refusal burdens everyone else.